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17岁的君仪患有粒线体症,这是一种罕有的新陈代谢病,她不能说话及走动,只能坐在轮椅上,用眼神及表情与人沟通。她的日常生活均需要由妈妈、外婆及家务助理协助。纵然君仪没有自理能力,但笔者第一次遇见君仪,便被她整齐的仪表及美丽的轮廓深深吸引。君仪出生后一个月开始,便出现吞咽困难,肌肉张力过高的严重情况,而且有发展迟缓的迹象,当时医生的诊断是脑部痉挛,并让她服用一些舒缓肌肉张力
The 17-year-old Monarch has Myelomonocytosis, a rare metabolic disorder that she can not speak or walk around. She can only sit in a wheelchair and communicate with people with her eyes and expression. Her daily life needs to be assisted by her mother, grandma and domestic helper. Even if you do not have the ability to self-care, but the author met the first time, it was her tidy instrument and a beautiful silhouette deeply attracted. One month after the birth of Monarch, a serious condition of dysphagia and hyper tensioned muscles appeared and there was a sign of retardation. At the time, the doctor’s diagnosis was cerebral spasm and she was given some soothing muscle tension