有这样一群可怜的孩子,从出生第一天起,厄运就开始伴随:经常反复出血,一个小伤口就会让他们血流不止;每天都要忍受难以形容的疼痛,当别的孩子在自由奔跑、玩耍时,他们只能坐在一旁,静静观望。因为从呱呱坠地的第一天起,他们就小心翼翼地避免受伤,他们的成长记忆,总是伴随着每天难以忍受的疼痛,以及日渐丑陋、畸形的关节。他们就是血友病患者。 With such a group of poor children, from the first day of birth, bad luck began to accompany: often repeated bleeding, a small wound will make them more than blood; every day to endure indescribable pain, when other children are free to run When they play, they can only sit side by side and wait and see. Because from the first day of the fall, they carefully avoid injuries. Their memory of growth is always accompanied by unbearable pain every day, and increasingly ugly, deformed joints. They are hemophiliacs.