ALS是一种比较罕见的疾病,其对患者的影响是毁灭性的。一项病毒式社交媒体活动为一种罕见病带来了前所未有的资金。但新一轮捐款将如何帮助ALS研究?毫无疑问,社交媒体活动提高了社会对这一问题的认识,但是ALs冰桶挑战对罕见病的影响是前所未有的。这项活动要求参与者必须为ALs协会捐款,或录制自己被冰水浇遍全身的视频。自今年6月底以来这一活动出现病毒式扩展,但同时也引起争议,一些人质疑, ALS is a relatively rare disease whose impact on patients is devastating. A viral social media campaign brings unprecedented funding to a rare disease. But how will a new round of donations help ALS research? There is no doubt that social media activities have raised public awareness of this issue, but the impact of the ALs ice bucket challenge on rare diseases is unprecedented. This event requires participants to donate to the ALs Association or to record videos of themselves being covered in ice water. There has been a viral expansion of this activity since the end of June this year, but it has also caused controversy. Some people question that,