论文部分内容阅读
In 2009 the European Council of Ministers adopted a Recommendation on an action in the field of rare diseases.This Recommendation encouraged countries to define and implement a plan or a strategy for rare diseases by the end of 2013 and requested that the European Commission establish an EU Committee of Experts in the field of Rare Diseases (EUCERD) as a forum of stakeholders to propose areas of action at European level.There is now enough evidence to judge the outcome of Recommendation which can be qualified as positive despite the economic crisis.The activity in the field is dynamic and impressive.The publication of the annual report on the State of Art of Rare Disease Activities in Europe by the EUCERD Scientific Secretariat is testament to the many achievements of the Committee.